tag:blogger.com,1999:blog-11152003.post1377716217788820994..comments2023-11-03T10:58:13.134-04:00Comments on Special and Needy: More Gray. And Maybe a Few Other Colors.Metehttp://www.blogger.com/profile/07276808432623125931noreply@blogger.comBlogger17125tag:blogger.com,1999:blog-11152003.post-83222793187329609942007-03-10T08:46:00.000-05:002007-03-10T08:46:00.000-05:00Hi Mete ,I should say reread your post when I was ...Hi Mete ,<BR/><BR/>I should say reread your post when I was in a more open state of mind! (a mind I am clearly losing).<BR/>KathrynKathrynhttps://www.blogger.com/profile/16388107764837538301noreply@blogger.comtag:blogger.com,1999:blog-11152003.post-13339868501230609582007-03-10T08:44:00.000-05:002007-03-10T08:44:00.000-05:00Hi Mete,I just read this - sorry am trying to catc...Hi Mete,<BR/><BR/>I just read this - sorry am trying to catch up on your blog. I found it really illuminating. Ethan is lucky to have you as a mom. I found myself very open to what you had to say about the whole Ashley thing because you were so balanced. You weren't going to prempt nature but wait and see about the issues and deal with them as they arose. I get what you are saying about Ethan's Kathrynhttps://www.blogger.com/profile/16388107764837538301noreply@blogger.comtag:blogger.com,1999:blog-11152003.post-49753713904548295792007-02-13T23:18:00.000-05:002007-02-13T23:18:00.000-05:00Just checking the blog and realized it had been aw...Just checking the blog and realized it had been awhile, and I do hope that things are going well. <BR/><BR/>I have learned so much from your blog and your links. Thank you for sharing so much. It's very helpful.Emilyhttps://www.blogger.com/profile/10855023812969399550noreply@blogger.comtag:blogger.com,1999:blog-11152003.post-75510672287318255042007-01-21T09:42:00.000-05:002007-01-21T09:42:00.000-05:00I admit I know nothing, except what I learn throug...I admit I know nothing, except what I learn through you. This post choked me up. And enlightened me.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11152003.post-82202917313478777192007-01-18T19:36:00.000-05:002007-01-18T19:36:00.000-05:00This story really made me think, that and reading ...This story really made me think, that and reading your blog and other blogs from parents with very disabled children. I have been very ignorant but I want you to know that I have been talking about these issues a lot with pretty much everyone I know.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11152003.post-59856682064711802692007-01-14T16:22:00.000-05:002007-01-14T16:22:00.000-05:00Hi Mete,
I could not locate your email on your pr...Hi Mete,<br /><br />I could not locate your email on your profile so I am replying here.<br /><br />Kaleigh Mulligan is the Mass Health program you might consider applying for. The income of the child determines eligibility, not the income of the parents. <br /><br />If you want to discuss more post a comment with your email on my site.Kathrynhttps://www.blogger.com/profile/16388107764837538301noreply@blogger.comtag:blogger.com,1999:blog-11152003.post-87265133287658482212007-01-14T14:24:00.000-05:002007-01-14T14:24:00.000-05:00Thanks, everyone.
Kelly - I do plan to take Ethan...Thanks, everyone.<br /><br />Kelly - I do plan to take Ethan to some sort of swim program SOMEDAY (as long as it's after work, or on the weekends, and accessible, and blah blah blah). Right now, it's too difficult with our car situation to take him too many places other than what is necessary. We're planning to get a handicapped van sometime this year, and it will make it much easier to transportMetehttps://www.blogger.com/profile/07276808432623125931noreply@blogger.comtag:blogger.com,1999:blog-11152003.post-62494810357146754282007-01-14T06:55:00.000-05:002007-01-14T06:55:00.000-05:00Hi Mete,
Ethan should be eligible for Mass Health...Hi Mete,<br /><br />Ethan should be eligible for Mass Health and bath seats through that and nursing or PCA care. I can't believe he is not on it. Ellie wasn't on it for a long time and in fact we got rejected twice until we met a nurse who helped us with it. <br /><br />Let me know if you want to discuss. It's not based on income when the child's needs are sever enough.<br /><br />Love your blogKathrynhttps://www.blogger.com/profile/16388107764837538301noreply@blogger.comtag:blogger.com,1999:blog-11152003.post-87245822084766509852007-01-13T12:32:00.000-05:002007-01-13T12:32:00.000-05:00Mete, as part of that extended family I talked ab...Mete, as part of that extended family I talked about last night I want to thank you for your insights, support, and love you share with us through your blog and your comments to others. You don't realize it but yours and Ashley's families were with us in front of that camera.<br /><br />I look forward to walking our path together in the coming years.Ben and Benniehttps://www.blogger.com/profile/12165216797183902071noreply@blogger.comtag:blogger.com,1999:blog-11152003.post-80970876112388078602007-01-12T23:30:00.000-05:002007-01-12T23:30:00.000-05:00I wanted to tell you that I have read the Ashley s...I wanted to tell you that I have read the Ashley story, your story, and I have also been reading Dream Mom since she first began to blog.<br /><br />Something isn't settling right with me here. First, you should know that I am not a parent of a disabled child. My empathy goes out to every one of you. I honestly don't know how you do what you do.<br /><br />I'm shocked by the number of people who Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11152003.post-19095094822884595312007-01-12T15:03:00.000-05:002007-01-12T15:03:00.000-05:00Reading your post chokes me up - I can't imagine ...Reading your post chokes me up - I can't imagine not being able to hug your mommy and have her hold you and rock you on her lap and tell you that everything is going to be ok. And I can't imagine how it must feel to be the mommy, whose child needs comforting, but can't come to her and she can't pick him up and put him on her knee, and has to settle for sitting close by.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11152003.post-41491836563498579412007-01-11T20:07:00.000-05:002007-01-11T20:07:00.000-05:00Hi. Glad to find you. Hope you don't mind if I s...Hi. Glad to find you. Hope you don't mind if I stick around and read.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11152003.post-52151893206035028762007-01-11T12:06:00.000-05:002007-01-11T12:06:00.000-05:00(Sigh)
If only we NEVER had to make medical decis...(Sigh)<br /><br />If only we NEVER had to make medical decisions for our kids. If only.<br /><br />But you're right about the government help. We actually got some....<br /><br />...but they can't find ANY nurses to come out and fulfill the obligation. Talk about a catch-22. We get the services, but no one will DO the services.<br /><br />As far as the bathroom issue goes, 2 things come to mind:Kellyhttps://www.blogger.com/profile/00672853334159695888noreply@blogger.comtag:blogger.com,1999:blog-11152003.post-313518527487603822007-01-11T11:59:00.000-05:002007-01-11T11:59:00.000-05:00OMG, he's FIVE? Jesus. I remember when you told m...OMG, he's FIVE? Jesus. I remember when you told me you were pregnant with him, which seems like both yesterday and a million years ago. Dammit, I am old. (Where's the surgery to stop THAT from happening? Because I would like to sign up for it right now, thanks.)<br /><br />You all have been through so much in these 5 years, I can't even begin to imagine how you handle it all. I know how lucky Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11152003.post-26788272917803087232007-01-11T11:26:00.000-05:002007-01-11T11:26:00.000-05:00I think everyone is ignorant unless it happens to ...I think everyone is ignorant unless it happens to them or someone they care about. Only when they've struggled with some of the practical aspects can they fully start to "get" the extent of the need for better services. In the long run it would even prove much more cost effective, I am sure, because enabling more families to keep their loved ones home and a part of the household would save Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11152003.post-26345016628916653182007-01-11T06:26:00.000-05:002007-01-11T06:26:00.000-05:00I was ignorant too. I think most people are, unfor...I was ignorant too. I think most people are, unfortunately. This post really choked me up. Ethan deserves all the joy in the world, no matter how big he gets.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11152003.post-41036306961539499962007-01-11T01:20:00.000-05:002007-01-11T01:20:00.000-05:00Mete,
I was that ignorant too. Then I had Moo an...Mete,<br /><br />I was that ignorant too. Then I had Moo and I realised that I lived in a fairy land beforehand. I have noticed that we are the only people still talking about this. I too hope that changes.<br /><br />Take care,<br />JacquiJacquihttps://www.blogger.com/profile/03039454415384297225noreply@blogger.com